Take a moment to think about the places you routinely travel within your neighborhood and community. Do you see Down syndrome? If so, where? Most of the time when I pose this question, people draw a blank. Why? Because for the most part, we live in a world that doesn’t create the spaces necessary for…
Pain Is One of Those Things I Don’t Like Much
Editor’s Note: This post, taken from Lisa Gungor’s new book The Most Beautiful Thing I’ve Seen, touches on the moments after she, her family, and her close friends discover that her newborn daughter Lucie (Lucette) has Down syndrome. Lisa wrote a song about Lucie titled “Light,” which is what Lucette means. Click here to watch the music video. I…
Life in the Shadow of Death
When Macyn came home at three months old, you can bet I had a stack of books with expert advice on babies, as well as on babies with Down syndrome. I perused the web to help fill in the gaps the books failed to address. In addition, I had my own ideas on what would…